Hemophilia Foundation of Michigan Programs and Services
As a volunteer group founded in 1956, the Hemophilia Foundation of Michigan (HFM) strives to improve the quality of life for all people affected by hemophilia, von Willebrand’s disease, other coagulation disorders and related complications, including HIV/AIDS and hepatitis. Over time, the organization has evolved into a nonprofit foundation providing services in Michigan, Ohio, and Indiana. HFM collaborates with 19 hemophilia treatment centers in those states, and oversees several federal care and prevention programs.
Serving children ages 6 – 13, Camp Bold Eagle is a week-long summer camp in southern Michigan for children with bleeding disorders. Eagle Outpost is an adolescent travel camp serving youth ages 14-17. Each camp offers recreational activities such as archery, fishing, swimming and boating, as well as bleeding disorder education. Campers learn to self infuse factor, an important step on the way to independence, and earn their Butterfly Award.
Hemophilia Treatment Centers
HFM has fiduciary responsibility for all federal funding for 19 Hemophilia Treatment Centers: nine in Michigan, nine in Ohio, and one in Indiana. Together these regional centers serve 4,300 bleeding disorder patients each year – more than any other region in the country. HFM is also responsible for comprehensive care and prevention programs that are funded by the U.S. Maternal and Health Bureau and the Centers for Disease Control.
Retreats, Education and Training
Each year HFM sponsors several retreats and training programs for the members of the bleeding disorder community. These include retreats designed for men, women, teens and adults with HIV. These educational retreats help individuals learn coping strategies, network with others with bleeding disorders, and obtain information on appropriate psychosocial and medical resources.
Financial Support and Counseling
HFM provides counseling and support to families and individuals living with bleeding disorders. Crisis relief is conducted through counseling, emergency financial support, and referrals to valuable community resources.
Advocacy
At local, state, and federal levels, HFM advocates on behalf of the bleeding disorder community for programs, services, and funding to build and maintain a comprehensive system of care and support. The organization addresses issues related to product supply, state and private reimbursement, funding, insurance, and managed care issues.